Thoughts: Memorial Day
Yesterday was Memorial Day, here in the United States. It is a day that we commemorate the ultimate price paid by our troops. As a veteran, it has…
Intimidation
It starts on day one. What you are told will shake you to the core. There is no mincing of words. "You have 2-5 years and there is…
Tired
I'm tired...ALS is exhausting. In so many ways. ALS doesn't believe in breaks. It has no sympathy. It cuts no slack. My favorite line from the movie 'The…
Random Thoughts
I think all of us can relate to the randomness of the human mind. A thought in one moment becomes a completely different thought the next. Today, I…
Finding Joy
For those of us directly affected by ALS, this is easier said than done. It is quite easy to be overcome with grief and despair. There are not…
A New Normal
So, I decided to take last week off. It has been a pretty busy year for me so far. Running around here and there. Plus, I just wasn't…
Milestones?
We typically think of Milestones in life in terms of positive accomplishments. The first time we crawl or walk. First words. Graduations, marriage , etc. Unfortunately, ALS has…
Excursion Experience
Getting out of the house these days is quite the experience. On top of the preparation there are considerations to take into account. Since I am in my…
My Heart
I could never imagine facing my life without her. Let alone staring down this beast. She is my heart. She is my soul. She completes me. She is…
The Movement
Amyotrophic Lateral Sclerosis was first described in 1869. 150 years later, not much has changed. People are still dying from it and the prognosis for those diagnosed is…