Fighting
So, here we are. It has been 5 months post trache and things are going well. It was a little bumpy for a bit. As is common, I…
So, here we are. It has been 5 months post trache and things are going well. It was a little bumpy for a bit. As is common, I…
Today marks 4 weeks since I had the procedure to place a tracheostomy tube. Boy, has it been quite the adventure. Let's talk about it. I made it just…
ALS is quite fond of throwing a wrench in plans. You think you have a good plan in place and ALS decides to plop a big ol' stinker…
The disease of loss. It takes and takes from everyone it touches. There is very little that this disease gives besides heartbreak.Among the losses we face individually ,…
It has been a minute. Don't fret. I am still here. Living the Covid life. Last time you heard from me , we were only a couple of…
We all have fear. Everyone. Anyone who says otherwise is lying. I have fears. I do my best to face them. There is no shame in it. …
Life in a box. Right now , the world is seeing a story unfold unlike any seen before. Plagues have traveled the earth in times past. However, the…
We come from all over. Different backgrounds. Different life experiences. Different ALS experiences. All of our stories are endearing. I would like to take a few…
We have two choices. Give in. Or just keep fighting. I think it is pretty obvious which choice I have made. I find no fault in either, though. …
This disease is draining. It is relentless. It takes a tremendous amount of energy to even try to keep pace in the fight. It is a constantly opening…