ALS: Care
This has been a rather busy week for me. It has been filled with appointment after appointment. That is life with ALS. It really does require a village…
Tools Of The Trade v2.0
Let's continue talking about how one might live with ALS. In part 1 of TOTT, I discussed some of the items that I have and use as…
Tools Of The Trade
I recently had a blog follower request for me to cover today's topic. Shout out to her and her husband as they continue their fight with ALS. …
Resources
A diagnosis of a terminal illness sends your life into a whirling dervish. The dreaded statement, "There is nothing we can do. Get your affairs in order. "…
This Is A Test
ALS puts us through the wringer. It chews us up and spits us out. Then goes back for seconds. Not only does it do this to the afflicted,…
That Wasn’t In The Brochure!
We know what ALS does to us. Fasciculations, cramps, weakness, muscle wasting(atrophy). Loss of movement, speech and ultimately, on to the great fishing boat in the sky. But…
Three
November 18, 2015...This date will forever be etched in the mind of me and my family. Three years ago, I was given my death sentence. Life continues…
What I Wouldn’t Give
I try to be thankful for the life that I have been blessed with every day. Yes, even under the circumstances that I have been given. Almost all…
Why Am I Doing This?
I contemplated this undertaking for quite some time before I finally pulled the trigger. It's just writing, I know. To me, though, there is more behind it. It's…
There’s No I In Team!
Living with ALS is freaking hard! It a never ending downhill slide. Only without the laughing and grass stains on the knees of your jeans. It is a…