4 years ago, on this day, my life would be forever changed. Today is my ALSiversary. 4 years ago, my wife and I sat in a room on a crisp November day and heard those fateful words. “The tests confirm that you have ALS. “
So much has changed since then. And nothing is what we thought it would be. That day, I walked out of the building on Floyd Curl, got into our car and drove us home. Now, I can’t even remember what that was like. I haven’t sat behind a wheel in about 2 years. Nor have I walked normally in about the same.
I won’t lie. 4 years ago, I didn’t really think I would make it this long. Let alone, be doing as well as I am. Not that I am in great condition, but I can still get to my feet. I can shuffle a short distance with help. I am still able to eat anything I desire. Albeit, much slower. Some days I am able to communicate fairly enough to be understood, verbally. You know what? I will take it, at this point.
Though things with me are not as bad as they could be. Life is not without its disappointments. You would think that something like dying would be a unifying event. Alas, it has not been so. It seems that everyone around us is content to ignore what we are going through. Out of sight, out of mind, right? Maybe it’s our fault. Maybe our reluctance to ask for help has created this false sense of normalcy. Or maybe people are just too self absorbed to care. Does it really matter? In the end, it has become sadly apparent that this is how it is.
4 years has taught us much. It has taught us adaptation. It has taught us gratitude and appreciation. It has taught us resilience. We have learned to swallow our pride. It has shown us the best in people and the worst in people. Most of all, it has taught me to be thankful for each and every day. No matter what life has served on my plate.
4 years has brought some amazing people into our lives. It has also seen some amazing people go. This is the nature of ALS. We keep pushing forward. I will make the most of the time I am granted on this earth. Give. Take. Here’s to the next 12 months. One day at a time.